Recent blog posts

PDA Parenting Insights

Trying to find the “right” medication for ADHD and PDA symptoms can feel completely exhausting. There are so many options — stimulants, non-stimulants, anxiety medications, mood medications — and every brain responds differently. One medication helps focus but increases anxiety. Another helps emotionally but causes fatigue, irritability, weight gain, or too much weight loss. It often feels like constant trial and error, and honestly, it is so hard watching your child go through that.What makes it even harder is just how complex the brain really is. ADHD and PDA are not simply about attention or behavior. They involve anxiety, executive functioning, emotional regulation, sensory overwhelm, nervous system responses, transitions, and so much more.Sometimes I genuinely cannot understand how the science still is not further ahead. It is frustrating, heartbreaking, and just plain hard — for both our child and us — watching yet another medication either not work at all, or work somewhat but come with side effects that simply are not worth it.That said, I still hold onto hope. I recently had a conversation with a pediatrician who felt there is a strong likelihood that PDA could eventually be recognized in a future version of the DSM. Could you imagine? PDA being fully recognized in North America. Less gaslighting. Less fighting to explain what our kids are experiencing. Easier access to the right supports. But most importantly, recognition could open the door to more research funding, better understanding, and hopefully more targeted medications and supports!

DSM & Medication Research

people riding on swing carousel during daytime

A lot of PDA kids live in an almost constant state of stress, pressure, or nervous system overwhelm. Their brains are often scanning for demands, expectations, and loss of control — even during everyday things that don’t seem like a big deal to other people.When a child is dysregulated like that, their brain can basically get stuck in survival mode. That’s why things like brushing teeth, homework, getting dressed, or even answering a question can suddenly feel impossible. This is where dopamine can come in and help your child!Dopamine is the brain chemical connected to motivation, reward, interest, excitement, and anticipation. When something feels fun, new, interesting, or emotionally rewarding, the brain gets a little dopamine boost — and for some PDA kids, this can 'temporarily' help pull them out of that “stuck” feeling.That’s why you might notice your child suddenly becoming more flexible after:Talking about a favorite interest Buying a small new item Planning a fun outing Trying a new activity Getting a surprise Watching an exciting video Playing a game Laughing and connecting with someoneIt’s not always about the actual thing itself. Often it’s the anticipation, excitement, novelty, or sense of control that helps regulate their nervous system.Now sometimes parents worry this means their child is “spoiled” or is always chasing rewards. But honestly, a lot of PDA kids are not seeking dopamine because they’re greedy or entitled — they’re seeking relief from feeling dysregulated, anxious, or stuck.For many PDA kids, dopamine isn’t just about pleasure. Sometimes it’s what helps their brain feel safe enough to engage at all. &nbsp; &nbsp; &nbsp; &nbsp; &nbsp;&nbsp; &nbsp;

Dopamine Hits

Some days it’s really hard to find the positive—and I think it’s important to say that out loud.There’s this quiet pressure to reframe everything, to find the silver lining, to tell ourselves “it’s okay.” But the truth is, sometimes it’s not okay. The world we’re raising our kids in isn’t built with them in mind. And waiting around for it to magically become easier or more understanding doesn’t help us in the moments that actually matter.Right now, our journey is hard. Not in a vague, poetic way—but in the real, everyday ways that show up in exhaustion, advocacy, second-guessing, and trying to hold it all together when things feel anything but simple.So today, instead of forcing gratitude or pretending we’ve figured it out, I’m choosing honesty. This is hard. And acknowledging that doesn’t make us negative—it makes us grounded, aware, and still showing up anyway.If you’re in a season like this too, you’re not alone in it. 💛

Hard Days

Mother and daughter share a warm, loving hug.

Co-regulation is one of the most powerful—and often overlooked—supports for children with a PDA profile. When a child is in distress, overwhelmed, or resisting everyday demands, it’s easy to assume they need firmer boundaries or more independence. In reality, what they need first is connection with you!Co-regulation means an adult lending their calm, steady nervous system to help a child regain balance. For PDA kids, whose anxiety can spike quickly when they feel pressured or out of control, this isn’t optional—it’s foundational. Before they can think, reason, or comply, they need to feel safe.This can look simple on the surface: a calm tone of voice, sitting nearby without demands, offering reassurance, or even just being quietly present. It might mean lowering expectations in the moment or shifting from direct instructions to collaborative language. These small adjustments signal to the child, “You’re not alone. I’ve got you.”The key is understanding that regulation comes before expectation. A dysregulated child cannot access logic or meet demands, no matter how reasonable they seem. But when we co-regulate—when we stay grounded instead of escalating—we help build the child’s capacity to eventually regulate themselves.Over time, these repeated experiences of being supported through hard moments become internalized. The child begins to develop their own tools for managing stress, not because they were forced to, but because they were shown how, safely and consistently.For PDA kids, co-regulation isn’t a crutch—it’s the bridge to independence 💛

Shared Calm

three silver paint brushes on white textile

Special interests are one of the most fascinating, complex, and often misunderstood parts of autism. From the outside, they can look intense—sometimes even overwhelming. But from the inside, they’re something entirely different: a source of identity, joy, and comfort.When an autistic child connects with a special interest, it isn’t casual curiosity—it’s full immersion. It’s a level of focus most people rarely experience. They don’t just like something—they live it. They absorb details, spot patterns others miss, and build a depth of knowledge that’s genuinely impressive. It’s as if their brain locks on and says, “This matters—let’s understand it completely.”That intensity can take over at times—conversations, routines, even daily life. But it’s also where their strengths live: passion, creativity, and the ability to go deep in a way that’s rare and powerful.And then—sometimes suddenly—it changes.What once filled every moment can stop almost overnight. We saw this firsthand: six months of skincare, then one morning it was all about paint and art. The switch was instant—and fascinating.One thing we’ve learned: don’t rush to get rid of a fading interest. These passions often come back. We simply rotate things in and out—packing one away while the next takes its place. It may seem unusual, but it saves stress, money, and a lot of scrambling when that interest returns. 💛

Special Interests

A smiling young girl poses for the camera.

When “She Looks Fine” Doesn’t Tell the Whole StoryThere’s a quiet struggle that comes with raising a child whose challenges aren’t always visible.When people see my daughter after some time, they often say, “She looks so good,” or “She seems happy.” I know they mean well. But those words can be hard to hear.Because what you’re seeing is not the full picture.Autism—especially with PDA—can be incredibly invisible. What looks like calm, content, or capable is often masking. It’s a version of my daughter holding it together for a moment, not a reflection of how hard things really are.What isn’t seen are the daily challenges:<ul><li>The difficulty with basic routines like dressing or brushing teeth</li><li>The constant balancing of medications and side effects</li><li>The appointments, the planning, the emotional toll</li></ul>And what’s especially unseen is the cost of “looking okay.” What happens before and after that moment.Just because she can do something sometimes doesn’t mean it’s easy—or sustainable.So when someone says, “She looks fine,” it can feel like everything we’re carrying is being overlooked. Not intentionally—but it still lands that way.The truth is, masking is not the same as coping well. It’s survival.I don’t expect everyone to understand. But I do hope people can trust that what isn’t visible is often where the real struggle lives.

She Looks Great.....

a little girl sitting on a couch with her hair blowing in the wind

When “Just Say Hello” Isn’t Simple: A Moment That Broke My HeartWe had one of those mornings.The kind where everything feels hard before the day has even really started. My daughter was already deep in autistic burnout, and when that happens—especially with her PDA profile—everything becomes a demand. Even the smallest things. Even the things most people don’t think twice about.Getting dressed wasn’t simple. I had to help her with every step. Emotions were high. There was aggression. We were both exhausted before we even got out the door. Honestly, just making it to church felt like a huge win.When we arrived, we were standing in a small group, trying to settle in. A friend of mine came over with her family and joined us briefly. It seemed like a normal moment—nothing unusual, nothing that stood out to me at the time.What I didn’t notice was that my daughter—and the friend she was with—didn’t say hello to her daughter.I missed it completely.A few minutes later, we all went our separate ways. And about ten minutes after that, my friend walked by me. She didn’t stop. She didn’t pause to talk. As she passed, she said—clearly hurt—something along the lines of, “the girls are not nice, they didn’t say hello,” and kept walking.And just like that, my heart dropped.Because I hadn’t even realized anything had happened.I didn’t get the chance to gently explain. I didn’t get the chance to add context. I didn’t even get the chance to acknowledge her feelings in that moment.And yet I understood them.From her perspective, it likely felt like her daughter was intentionally ignored—and as a mom, seeing your child hurt like that breaks your heart. I get it.But what she couldn’t see was everything that came before that moment.She didn’t see how hard that morning had been. She didn’t see how close we came to not making it there at all. She didn’t see how much support my daughter needed just to get dressed. She didn’t see the overwhelm my daughter was carrying into that room.And she couldn’t see that, in that moment, “just saying hello” wasn’t simple—it was one demand too many.That’s the reality of PDA and autistic burnout. When a child’s nervous system is overloaded, even the smallest social expectations can feel like pressure. And that pressure doesn’t lead to cooperation—it leads to shutdown, avoidance, or sometimes aggression.So while it may have looked like rudeness, what was really happening was survival.I’ve sat with that moment a lot since it happened.Because I care. About my daughter, and about my friend and her daughter. And those are the moments that are the hardest—the ones where two valid experiences exist at the same time, but there’s no space to hold both in the moment.The quick comment in passing. The lack of conversation. The assumption made in a second, without the full picture.These are the moments that can feel so isolating as a parent.Because what looks like defiance is often overwhelm. What looks like unkindness is often a child doing their absolute best to cope.If you’ve ever been on the receiving end of something like this, I understand why it might hurt. But I gently ask—pause before you assume intent. There may be a whole story you didn’t see.And if you’re a parent like me, holding all of this in real time, trying to support your child while navigating other people’s reactions—you’re not alone.Some days, success isn’t saying hello. Some days, success is just showing up at all.

When “Just Say Hello” Isn’t Simple

<h2>Autism BC Programs</h2><a data-mce-href="https://www.autismbc.ca/" href="https://www.autismbc.ca/" target="_blank" rel="noopener" data-mce-selected="inline-boundary">Autism BC</a> is a leading organization in British Columbia dedicated to providing resources and support for individuals with autism and their families. Their programs are designed to promote inclusion, understanding, and empowerment. Whether you're a parent, educator, or someone seeking information, Autism BC offers a variety of services tailored to different needs.<h3>Family Support Services</h3>One of the core offerings of Autism BC is their comprehensive family support services. These services include personalized consultations, educational workshops, and support groups. Families new to an autism diagnosis can find guidance and reassurance through these programs, which are designed to help them navigate challenges and celebrate successes.Support groups provide a safe space for sharing experiences and building community connections. They cover various topics, offering insights into managing daily life and accessing resources effectively.<h3>Educational Workshops</h3>Autism BC regularly hosts workshops and training sessions for families, educators, and professionals. These sessions cover a wide range of subjects, including behavior management, communication strategies, and sensory integration. Participants gain valuable skills and knowledge, enhancing their ability to support individuals with autism.The organization also offers webinars and online courses, making it easier for people across British Columbia to access essential information regardless of their location.<h3>Social Programs and Activities</h3>Recognizing the importance of social interaction, Autism BC offers a variety of social programs and activities. These initiatives are designed to help children, teens, and adults with autism build friendships and develop social skills in a supportive environment.<ul><li>Social clubs for different age groups</li><li>Outdoor activities and sports events</li><li>Creative workshops like art and music therapy</li></ul><h3>Resource Library</h3>Autism BC maintains an extensive resource library that is accessible to the public. This library includes books, articles, and multimedia materials on autism-related topics. Parents, educators, and professionals can find information on the latest research and best practices in autism support.The library is continually updated, ensuring that users have access to the most current and relevant information available.

Autism BC Programs

If you’re parenting a child with a PDA profile, you’ve likely seen behaviour that looks like defiance—refusing, ignoring, pushing back over simple things.For PDA children, everyday demands can trigger anxiety and a loss of control. What looks like “won’t” is often a genuine “can’t” in that moment. The more pressure they feel, the more they resist.Common Trap When we think it’s defiance, we push harder—repeat the demand, raise our voice, add consequences. Unfortunately, that usually escalates things.Small Shifts That Help Soften the demand: “I wonder which shirt you’ll pick today?” Offer choices: “Before or after breakfast?” Use playful or indirect language Focus on connection before compliance The Reframe When we move from “they’re being difficult” to “they’re feeling overwhelmed,” our response changes—and so does the outcome.You’re not lowering expectations. You’re meeting your child where they are.

It Looks Like Defiance But Isn’t

PDA Support

PDA Support is a newly established site based in Surrey, Canada, dedicated to providing resources and assistance for individuals with Pathological Demand Avoidance. As a startup, the platform aims to connect families, educators, and professionals with valuable information and support.